Resources

National Organizations

Sickle Cell Disease Association of America (SCDAA) – https://www.sicklecelldisease.org/ – patient education guides, fact sheets, and symptom management resources
National Heart, Lung, and Blood Institute (NHLBI) – https://www.nhlbi.nih.gov/health/sickle-cell-disease – Evidence-Based Management of Sickle Cell Disease: Expert Panel Report 2014
Centers for Disease Control and Prevention (CDC) – https://www.cdc.gov/sickle-cell/ – SCD fact sheets, living with SCD guides, and family resources
American Society of Hematology (ASH) – https://www.hematology.org/education/patients/anemia/sickle-cell-disease – patient education materials and clinical guidelines

California Department of Public Health – Sickle Cell Data Collection Program – https://www.cdph.ca.gov/Programs/CFH/DGDS/Pages/cbdmp/SCD.aspx
California Newborn Screening Program – https://www.cdph.ca.gov/Programs/CFH/DGDS/Pages/nbs/default.aspx – information on newborn SCD screening

NHLBI Evidence-Based Guidelines (2014) – https://www.nhlbi.nih.gov/health-topics/evidence-based-management-sickle-cell-disease
UCSF Standard of Care Guidelines (2025) – Standard of Care Guidelines | Sickle Cell Center for Excellence

Question 1

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Item #2

Item #3